Long Covid
We explore the impact of the shift to virtual healthcare on individuals with Long COVID in British Columbia, Canada. This project extends our previous work where we examined the experiences of patients, family caregivers, and clinicians, focusing on access to information and the perceived quality of care. We also learned of experiences with the B.C. Post-COVID Recovery Clinics, which upon transitioning to a virtual care model brought mixed reactions. Some appreciate the convenience while others express concerns about continuity and quality of care. Our studies highlight the need for further research into equitable and effective virtual healthcare strategies for Long COVID and other chronic conditions, considering the intersectional nature of health experiences.
Are you experiencing long-term symptoms after COVID-19 infection?
Our research team wants to learn about your experiences with virtual healthcare to strengthen Long COVID supports.
Outcomes
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Identify enablers and barriers to access and quality of Long COVID virtual care using an intersectional framework
This involves examining how access and quality of Long COVID virtual care differ across intersecting identities such as race, gender, socioeconomic status, and disability. Investigating these intersections can provide insights into the unique barriers and enablers experienced by individuals from diverse backgrounds in accessing and receiving high-quality virtual care for their Long COVID-related needs.
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Provide recommendations for the continuation and uptake of virtual care delivery for Long COVID patients
This includes identifying ways to improve virtual health delivery to better meet the needs of all individuals with Long COVID, particularly those from equity-deserving groups. This involves examining barriers and enablers to accessing and receiving high-quality virtual care and developing strategies to enhance the inclusivity and effectiveness of virtual care services for individuals from diverse backgrounds and with varying needs related to their Long COVID experience.
Media
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Making visible the invisible Supporting long COVID patients and the people caring for them
Smith, J., Byers, K., Jamieson, K., & Tesfaye, R. (2024, June 24). The Conversation.
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Researchers say that more support, education needed to help B.C. long-COVID patients
Darrian Matassa-Fung. (2024, April 5). Global News.
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People with long COVID continue to experience medical gaslighting more than 3 years into the pandemic
Byers, K., Jamieson, K., Zolfaghari, N., & Purewal, S. (2023, April 23). The Conversation.
Collaborators
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Kayli Jamieson
MSc Student & Longhauler, SFU
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Dr. Rackeb Tesfaye
Research Associate, KMb Director, SFU
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Dr. Julia Smith
PI & Assistant Professor, SFU
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Dr. Kaylee Byers
Assistant Professor, SFU
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Dr. Anh Pham
Post-Doctoral Fellow, SFU
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Dr. Hiten Naik
Physician & Research Fellow, Post-COVID-19 Interdisciplinary Clinical Care Network
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Tesla Bellina-Gustafson
Longhauler, Community Advocate
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Dr. Paulina Drohomyrecky
Longhauler, Immunologist, Artist, Disibility advocate
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Katy McLean
Longhauler, Disability advocate
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Mitra Mansour
Longhauler, Teacher, Community advocate
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Lindsay Dawn Dobbin
Longhauler, Artist, Community advocate
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Kathryn McClelland
Caregiver, Disability advocate
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Alannah Berson
Longhauler, Disability advocate
